Adenomyosis

I was recently diagnosed with Adenomyosis like Ankylosing spondylitis I have never heard of this disease before diagnosed, seems like once you get one autoimmune disease so many other things start happening in your body that you can’t control and no one has the answers as to why so i’am left with yet another disease that causes discomfort and pain 😔

Adenomyosis (ad-uh-no-my-O-sis) occurs when the tissue that normally lines the uterus (endometrial tissue) grows into the muscular wall of the uterus. The displaced tissue continues to act normally — thickening, breaking down and bleeding — during each menstrual cycle. An enlarged uterus and painful, heavy periods can result.

The cause of adenomyosis remains unknown, but the disease usually resolves after menopause. For women who have severe discomfort from adenomyosis, hormonal treatments can help. Removal of the uterus (hysterectomy) cures adenomyosis.

Symptoms

Sometimes, adenomyosis causes no signs or symptoms or only mild discomfort. However, adenomyosis can cause:

  • Heavy or prolonged menstrual bleeding
  • Severe cramping or sharp, knifelike pelvic pain during menstruation (dysmenorrhea)
  • Chronic pelvic pain

Your uterus might get bigger. Although you might not know if your uterus is enlarged, you may notice that your lower abdomen feels tender or causes pelvic pressure.

When to see a doctor

If you have prolonged, heavy bleeding or severe cramping during your periods that interferes with your regular activities, make an appointment to see your doctor.

Causes

The cause of adenomyosis isn’t known. There have been many theories, including:

  • Invasive tissue growth. Some experts believe that adenomyosis results from the direct invasion of endometrial cells from the lining of the uterus into the muscle that forms the uterine walls. Uterine incisions made during an operation such as a cesarean section (C-section) might promote the direct invasion of the endometrial cells into the wall of the uterus.
  • Developmental origins. Other experts suspect that adenomyosis originates within the uterine muscle from endometrial tissue deposited there when the uterus first formed in the fetus.
  • Uterine inflammation related to childbirth. Another theory suggests a link between adenomyosis and childbirth. Inflammation of the uterine lining during the postpartum period might cause a break in the normal boundary of cells that line the uterus. Surgical procedures on the uterus can have a similar effect.
  • Stem cell origins. A recent theory proposes that bone marrow stem cells might invade the uterine muscle, causing adenomyosis.

Regardless of how adenomyosis develops, its growth depends on the circulating estrogen in women’s bodies.

Risk factors

Risk factors for adenomyosis include:

  • Prior uterine surgery, such as a C-section or fibroid removal
  • Childbirth
  • Middle age

Most cases of adenomyosis — which depends on estrogen — are found in women in their 40s and 50s. Adenomyosis in these women could relate to longer exposure to estrogen compared with that of younger women. However, current research suggests that the condition might be common in younger women.

Complications

If you often have prolonged, heavy bleeding during your periods, you can develop chronic anemia, which causes fatigue and other health problems.

Although not harmful, the pain and excessive bleeding associated with adenomyosis can disrupt your lifestyle. You might avoid activities you’ve enjoyed in the past because you’re in pain or you worry you might start bleeding.

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Trapped in my own body!

Some days I try not to think about what my life has become living with a chronic illness that no one can see that most people haven’t even heard of and other days that’s all I think about it’s a never ending battle fighting my own body I feel trapped in a body that I can’t control everyday is a challenge from feeling tired not sleepy tired but body tired my body gets so tired literally the pain drains my body n soul the feeling of not being able to do the things that were once so easy and simple have now become the hardest things you have to do just to get through the day can become depressing you start to feel useless lonely misunderstood because no one understands your pain no one understands or believes that you can be in pain all day everyday. The pain never goes away the burning, stabbing, numbness, tingling, muscle weakness, joint pain, fatigue is there ALL DAY and all i can do is keep fighting through it to enjoy life still, that’s no way to live if you ask me. I’m grateful for my new journey I’m helping people in ways i never thought I could just by sharing my story and opening up a communication network for those suffering also u see I can’t do the things I use to do but I can do new things that can change someone’s life, when I was first diagnosed I went into a really deep depression I napped all year hence why I choose that name for my blog n social media networks I didn’t adjust right away I was moody always upset for no reason and just wanted to sleep the pain away I was just mad at the world for taking away what I loved it took me some time but as I educated myself I realized i’am Stronger then this and I will defeat this and fight in 2019 I told myself nay it’s time to fight and take your fab life back don’t let this stop you and I remind myself everyday when I have those moments where I want a give up but I’m fighting not only for me but for everyone else who is facing chronic illness although my life has changed drastically i found a new purpose and the reward of helping others cope is priceless if my story can help one person I did my job! If I can inspire one person I did my job if I can motivate one person I did my job if I can be a friend a listener I did my job see this journey is not only my journey it’s a whole MOVEMENT! This is my awesome support group 💙💙

What is Banana OG & Strawberry Cough?

I’ve been vaping medical marijuana for about a year and a half now and I’ve tried many different medications that have not been affective in my treatment plan and had very harmful side effects so I turned to medical marijuana it’s the only thing that helps some it doesn’t completely take my pain away but it def calms it enough to function a little I’ve tried many diff strains and brands of medical marijuana I continue searching for one really good one that will hit my pain, I’m trying these 2 bad boys out now keep u posted on the effects! #vapelife #medicalmarijuanapatient 💨🤪

Banana OG is an indica-dominant cross of OG Kush and Banana. With a smell and flavor of overripe bananas from a terpene profile dominant in limonene, caryophyllene, and pinene, this hybrid definitely earns its name. Banana OG has THC levels ranging between 19-24% and has a reputation as a creeper, leaving those who over-imbibe in a near comatose state before intense hunger and sleepiness sets in. Patients treating muscular pain, appetite loss, and insomnia may benefit from Banana OG.

Known for its sweet smell of fresh strawberries and an expanding sensation that can make even the most seasoned consumer cough, Strawberry Cough is a potent sativablend with mysterious genetic origins. The skunky, berry flavors will capture your senses while the cerebral, uplifting effects provide an aura of euphoria that is sure to leave a smileon your face. Strawberry Cough is a great solution for managing social anxieties and to balance yourself in times of elevated stress.

Femoroacetabular Impingement

I recently got an MRI of my hip and this is what they found feeling like I’m falling apart inside and I can’t do anything to stop it 😔😔😔😔😔😔😔😔

Femoroacetabular impingement (FAI) is a condition in which extra bone grows along one or both of the bones that form the hip joint — giving the bones an irregular shape. Because they do not fit together perfectly, the bones rub against each other during movement. Over time this friction can damage the joint, causing pain and limiting activity.

Anatomy

The hip is a ball-and-socket joint. The socket is formed by the acetabulum, which is part of the large pelvis bone. The ball is the femoral head, which is the upper end of the femur (thighbone).

A slippery tissue called articular cartilage covers the surface of the ball and the socket. It creates a smooth, low friction surface that helps the bones glide easily across each other during movement.

The acetabulum is ringed by strong fibrocartilage called the labrum. The labrum forms a gasket around the socket, creating a tight seal and helping to provide stability to the joint.

In a healthy hip, the femoral head fits perfectly into the acetabulum.

Description

In FAI, bone overgrowth — called bone spurs — develop around the femoral head and/or along the acetabulum. This extra bone causes abnormal contact between the hip bones, and prevents them from moving smoothly during activity. Over time, this can result in tears of the labrum and breakdown of articular cartilage (osteoarthritis).

Types of FAI

There are three types of FAI: pincer, cam, and combined impingement.

• Pincer. This type of impingement occurs because extra bone extends out over the normal rim of the acetabulum. The labrum can be crushed under the prominent rim of the acetabulum.

• Cam. In cam impingement the femoral head is not round and cannot rotate smoothly inside the acetabulum. A bump forms on the edge of the femoral head that grinds the cartilage inside the acetabulum.

• Combined. Combined impingement just means that both the pincer and cam types are present.

(Left) Pincer impingement. (Center) Cam impingement. (Right) Combined impingement.

Cause

FAI occurs because the hip bones do not form normally during the childhood growing years. It is the deformity of a cam bone spur, pincer bone spur, or both, that leads to joint damage and pain. When the hip bones are shaped abnormally, there is little that can be done to prevent FAI.

It is not known how many people have FAI. Some people may live long, active lives with FAI and never have problems. When symptoms develop, however, it usually indicates that there is damage to the cartilage or labrum and the disease is likely to progress.

Because athletic people may work the hip joint more vigorously, they may begin to experience pain earlier than those who are less active. However, exercise does not cause FAI.

Symptoms

The most common symptoms of FAI include:

• Pain

• Stiffness

• Limping

Pain often occurs in the groin area, although it may occur toward the outside of the hip. Turning, twisting, and squatting may cause a sharp, stabbing pain. Sometimes, the pain is just a dull ache.

Home Remedies

When symptoms first occur, it is helpful to try and identify an activity or something you may have done that could have caused the pain. Sometimes, you can just back off on your activities, let your hip rest, and see if the pain will settle down. Over-the-counter anti-inflammatory medicines, such as ibuprofen and naproxen, may help.

If your symptoms persist, you will need to see a doctor to determine the exact cause of your pain and provide treatment options. The longer painful symptoms go untreated, the more damage FAI can cause in the hip.

Doctor Examination

During your first appointment, your doctor will discuss your general health and your hip symptoms. He or she will also examine your hip.

Impingement Test

As part of the physical examination, your doctor will likely conduct the impingement test. For this test, your doctor will bring your knee up towards your chest and then rotate it inward towards your opposite shoulder. If this recreates your hip pain, the test result is positive for impingement.

Impingement test.

Reproduced from Armstrong AD, Hubbard MC, eds: Essentials of Musculoskeletal Care, ed 5. Rosemont, IL, American Academy of Orthopaedic Surgeons, 2015.

Imaging Tests

Your doctor may order imaging tests to help determine whether you have FAI.

• X-rays. These provide good images of bone, and will show whether your hip has abnormally shaped bones of FAI. X-rays can also show signs of arthritis.

• Computed tomography (CT) scans. More detailed than a plain x-ray, CT scans help your doctor see the exact abnormal shape of your hip.

• Magnetic resonance imaging (MRI) scans. These studies can create better images of soft tissue. They will help your doctor find damage to the labrum and articular cartilage. Injecting dye into the joint during the MRI may make the damage show up more clearly.

• Local anesthetic. Your doctor may also inject a numbing medicine into the hip joint as a diagnostic test. If the numbing medicine provides temporary pain relief, it confirms that FAI is the problem.

Treatment

Nonsurgical Treatment

Activity changes. Your doctor may first recommend simply changing your daily routine and avoiding activities that cause symptoms.

Non-steroidal anti-inflammatory medications. Drugs like ibuprofen can be provided in a prescription-strength form to help reduce pain and inflammation.

Physical therapy. Specific exercises can improve the range of motion in your hip and strengthen the muscles that support the joint. This can relieve some stress on the injured labrum or cartilage.

Surgical Treatment

If tests show joint damage caused by FAI and your pain is not relieved by nonsurgical treatment, your doctor may recommend surgery.

(Left) A cam bump on the femoral head. (Right) After the bump has been shaved down during surgery.

Reproduced from Diaz-Ledezma C, Higuera CA, Parvizi J: Mini-open approach for the treatment of FAI in Sierra RJ, ed: Femoracetabular Impingement. Rosemont, IL, American Academy of Orthopaedic Surgeons, 2013, pp 81-91.

Arthroscopy

Many FAI problems can be treated with arthroscopic surgery. Arthroscopic procedures are done with small incisions and thin instruments. The surgeon uses a small camera, called an arthroscope, to view inside the hip.

During arthroscopy, your doctor can repair or clean out any damage to the labrum and articular cartilage. He or she can correct the FAI by trimming the bony rim of the acetabulum and also shaving down the bump on the femoral head.

Some severe cases may require an open operation with a larger incision to accomplish this.

(Left) During arthroscopy, your surgeon inserts an arthroscope through a small incision about the size of a buttonhole. (Right) Other instruments are inserted through separate incisions to treat the problem.

What is Ankylosing Spondylitis?

Sorry I haven’t posted in a while my hands and wrist have become affected from my condition and I can not type a lot anymore As my diseases progresses I have to continue to spread as much awareness as possible about this monster called AS!

Ankylosing spondylitis (AS), also sometimes referred to as Bechterew’s disease or Marie Strümpell disease, is a chronic type of arthritis that causes inflammation, pain and stiffness most often in the spine and the joints located just above the tailbone, called the sacroiliac joints. Inflammation means that your body’s immune system is releasing chemicals into your blood and joints that cause pain and stiffness. Why? Because when you have AS, the normal signals that tell your immune system to spring into action — to protect your body from harm by viruses, bacteria, or injuries — are crossed. That’s called autoimmunity. In an autoimmune form of arthritis like AS, your immune system triggers inflammation and attacks your healthy joints and tissues by mistake. That’s why you have pain and other symptoms.

The inflammation that AS causes in the spine and joints above the tailbone can, in some people, result in the fusing together of some of the bones in the spine. In severe cases, this can affect your posture to such a degree that you become hunched-forward and cannot lift your head high enough to see ahead of you. AS can also affect tendons or ligaments where they attach to the bones. This is known as enthesitis. For example, when it affects the ligaments in the ribcage it can make it difficult to breathe. AS may damage organs such as the lungs and may even affect the eyes. Men tend to get AS more than womenand the disease typically begins in early adulthood.

Symptoms

It is important to note that the course of Ankylosing Spondylitis symptoms can be very different from person to person. Symptoms usually begin in early adulthood (between age 17 and 45), but in some people symptoms can start in childhood or much later in life. The most common symptoms of Ankylosing Spondylitis are pain and stiffness in the lower back and hips, and this pain is worse after periods of inactivity or when you wake up after sleeping. Areas most commonly affected are:

  • The joints between the base of the spine and the pelvis
  • Bones in the lower back
  • Cartilage (a rubbery type of tissue) between the breastbone and ribs
  • Between the shoulder joints

At first, you may feel pain only on one side of your body, or it may alternate sides. The pain is usually dull and feels like it’s all over your body, rather than localized. In the early stages of Ankylosing Spondylitis, you might also have a mild fever, loss of appetite and general discomfort.

People with Ankylosing Spondylitis often describe an ongoing, dull pain that feels like it’s coming from deep within their lower back or buttocks, along with morning stiffness. It is not unusual for symptoms to worsen, get better or stop completely at regular intervals. One very important symptom is back pain that wakes you up in the middle of the night. It is important to note that inflammatory back pain is different from mechanical back pain and often people with Ankylosing Spondylitis find that exercise can help reduce pain. People with Ankylosing Spondylitis may also have fatigue and lose range of motion and flexibility in their spine because the joints fuse together. Sometimes the disease makes it hard for the chest to expand when you breathe in. The most serious complication is fracture of the spinal bones. In approximately two to 10 percent of people with Ankylosing Spondylitis, Ankylosing Spondylitis causes various types of heart disease.

Causes

While there is no specific cause of Ankylosing Spondylitis, experts believe that your genes may play a role. If you carry the gene called HLA-B27 in your family, you may have a significantly greater risk of developing the Ankylosing Spondylitis. However, you don’t have to have the HLA-B27 gene to develop Ankylosing Spondylitis. In fact, most of the people with this gene never contract the disease. Experts believe that something in your environment, such as an infection caused by bacteria, is needed to trigger AS. One theory suggests that Ankylosing Spondylitis may be caused by bacteria from your intestines getting into your bloodstream in the area of the body where the sacroiliac joints are located.

Prognosis

There is no cure for Ankylosing Spondylitis but early diagnosis and treatment can ease pain and other symptoms. To prevent these painful Ankylosing Spondylitis symptoms from happening or to slow them down, you have to get your inflammation under control. That’s what your treatment plan — including your Ankylosing Spondylitis drugs and other steps like exercise — is designed to do. The goal of treatment is to reduce the pain and other symptoms, help you maintain normal posture and flexibility in your spine, reduce any limitations in your daily functioning and prevent or delay the complications of Ankylosing Spondylitis, including spinal deformity.

Ankylosing Spondylitis treatment is usually most successful if it starts before the disease causes irreversible damage to your joints. There are a number of medications used for Ankylosing Spondylitis. Surgery is usually only used for people with Ankylosing Spondylitis who have severe joint damage.

Diagnosis

Because Ankylosing Spondylitis can involve so many different systems and parts of the body, it can be difficult for your doctor to monitor your disease. Different doctors use different methods to measure your disease activity and check your progress, including your medical history, blood tests and various types of imaging such as x-rays or MRI. When you have Ankylosing Spondylitis, your disease activity includes three key things: persistence of your symptoms, how likely you are to develop severe Ankylosing Spondylitis disease and damage or deformity of your bones, and your response to treatment.

Doctors may use the BASFI and BASDAI – two surveys that ask you about your symptoms such as overall fatigue, pain, joint swelling and stiffness, and how Ankylosing Spondylitis is affecting you and your daily activities. These surveys can help your doctor to determine whether you need a different or perhaps a more powerful drug.

There are signs of inflammation in your blood that your doctor can test. These test results can show how active your disease is and how well your treatments are working. These are often called inflammatory markers. You should know that not everyone’s markers correlate with their disease activity. You may be having pain and swelling while these markers look normal or vice versa:

  • Erythrocyte sedimentation rate (ESR) or “sed rate”
  • C-reactive protein or CRP

X-rays of the spine or sacroiliac joints can show how your Ankylosing Spondylitis is progressing and whether you have any joint damage. Magnetic Resonance Imaging (MRI) of the spine is gaining wider acceptance among doctors as an important tool to show your level of ongoing inflammation. Your doctor will determine which drug or drugs to prescribe based on the results of these tests, along with other factors including:

  • Joint or organ damage
  • Other diseases you have, such as liver or lung disease
  • Possible reasons that the drug could do you harm and mean you should avoid it
  • Your personal preferences, such as drugs that are taken as pills or injections
  • Potential medication side effects

Side effects are changes that can occur in our bodies as the result of using a particular medication or device. Side effects can be mild or severe and can vary greatly from person to person.

Contraindications are situations when you should avoid taking a certain medication for health reasons. For example, you should not take DMARD therapy (a medication that is sometimes used to treat Ankylosing Spondylitis when non-steroidal anti-inflammatory medicines (NSAIDs) are not enough to control the pain, stiffness and inflammation) if:

  • you are pregnant;
  • have alcoholism;
  • have alcoholic liver disease or other severe chronic liver disease;
  • have immunodeficiency syndromes such as HIV/AIDS (some patients with HIV can take DMARDS and biologics under careful monitoring), in which your immune system is not working properly (overt or laboratory evidence);
  • or have pre-existing blood dyscrasias (for example, bone marrow hypoplasia, leukopenia, thrombocytopenia, or significant anemia).

If you have active hepatitis A, B, or C, you will need to be treated for that by a liver specialist before you take any drugs for your Ankylosing Spondylitis that suppress your immune system or affect your liver. Your liver specialist and rheumatologist can both decide, if once your hepatitis is either stabilized or being treated, that you can start to take certain medications for your Ankylosing Spondylitis. But you’ll need to be monitored closely. You may need to come in for blood tests often.

Friendships while living with chronic illness!

Since I’ve been diagnosed I’ve lost a lot of friends honestly i was sad at first but i learned that people come and go some stay for a life time and others stay for a season I’ve accepted that and I’m OK with losing people that were not for me. Although i lost some friends I’ve gained some amazing strong, beautiful, successful, friends that only have my best interest at heart and are here for me at my lowest points of my illness and my strongest moments and vice versa because when you call someone a friend that’s what friends do for one another they don’t kick you while your down they uplift you and help you get back up they want a see you win not lose they don’t hate they congratulate! We often wonder why certain things happen to us in life good or bad why did i get sick? for example i asked god everyday to show me a sign that this is where i’m suppose to be in my life and that my life is not completely over that even though i couldn’t work or do some of the things that i use to do that i still had a purpose here it took a while for him to show me it took a while for me to get up and fight, fight for my life back, fight for a purpose again, fight for the things that i use to love to do, i felt worthless, i felt useless and i felt defeated but through all of my battle i found my purpose again i found that i do work, i work on myself everyday being a better stronger version of me, i work on building a better future for my family, i work on being a more understanding and compassionate person, i work on loving myself, i work on helping others battle their illnesses because everyone copes and handles things differently in life what i can manage someone else might not be able to so i use that to help others find ways that work for them to cope with whatever their battling I’m not god i cant fix and help everyone now! But i use what i know what I’ve learned to try to help as many people as i can this is my purpose now this is my “work” now! We are all strong in our own way but always check on your “strong” friend you never know what they are facing.

My Fight With Ankylosing Spondylitis!

Everyday I wake up and i forget that I’m sick I forget that I’m living with this debilitating disease that is taking my freedom away from me I forget because I. Don’t want to remember the pain I will go through all day I forget because I don’t want to remember that I’ve lost some of my mobility already, I. D.o.n.t want to remember that I’ve had double jaw surgery and I have to undergo another surgery this week to correct my deviated septum AS caused a lot of joint damage and damaged my facial functions medication can not correct these issues unfortunately only surgery can 😔 AS has changed many things in my life I can no longer work because I can not sit, stand or walk for long periods of time without feeling excruciating pain, I can not play with my kids for long, I can not go out and hang out with friends for a long time the way I use to when I walk I have to take breaks or my body will shut down my mind wants to keep going but my body just can not keep up, people really don’t understand how serious this disease is and if you have a friend or family member suffering with this disease please check on them no matter how strong they may seem they are very weak and struggling to get through the day. I’am a very strong woman but even I can’t deal with this condition I try my best everyday to be happy, to stay positive, and be stronger than I was yesterday it is not easy it’s a battle that I know I can’t win but I keep fighting everyday 💪🏽💪🏽💪🏽💪🏽💙💙💙