Based on what we know so far about COVID-19 (coronavirus), people with autoimmune disorders and other health concerns have been more likely to have severe complications after contracting the virus than the general population. Your physician can review your medical record to give you a greater understanding of your personal risk.
Am I more likely to get COVID-19 because I have an autoimmune disorder?
People who have autoimmune disorders do not appear to be more likely to contract COVID-19. However, they may have severe complications if their immune systems are suppressed, either by their disease or by medications that treat their autoimmune disorder. Experts believe that the more underlying health conditions a person has, the higher their chance of having serious complications from COVID-19. It is unclear what impact COVID-19 has on the overactivity of the immune system in many autoimmune diseases. Additionally, it is unclear how the overactivity of the immune system in many autoimmune diseases affects the outcomes of COVID-19 infection.
Most people who take medications to suppress their immune systems are considered at least somewhat immunocompromised. This means your immune system is impaired and is less able to fight infections. It is especially important that you take precautions to avoid a COVID-19 infection.
On the day you were born, (Too little, too soon) I lay in denial, until about noon On the day you were born, I prayed and I cried For the baby I needed, to stay safely inside On the day you were born, 3 months before due I thought your heart rate was dropping so mine was too! On the day you were born, I wore a fake smile (Pretend to be happy, you’re meeting your child) Nurses, doctors and daddy, looking at me with worry Almost no time for steroids, you were in such a hurry On the day you were born, my world came crashing down There was nothing to do, but deliver you now In the light room I go, for the C-section scar Twenty minutes of pulling, and whoop, there you are So little, so fragile, nothing like the norm I thought I would lose you, on the day you were born They whisked you away, Family came to say hi I spent the whole evening, trying not to cry But as soon as they left, me alone in my room I mourned for the baby, I’d failed from the womb On the day you were born, Mommy just couldn’t cope I desperately needed, to see signs of hope For you were a pound, and I wasn’t sure That good things could come, from blessings premature I didn’t go meet you, heartbroken and torn Waited 24 hours, from the day you were born And then I went walking, Motherhood in suspense The happiness fleeting, the sorrow intense Before I went in, I said to the worry She deserves a proud mommy, no matter how early I walked to your “incu”, to my delayed joy Yes you were, really little, but MY little girl You waved a small hand, calling for me to take it From that moment on, I knew you would make it I sat there for hours, committed to see Just a hint of the miracle, waiting for me I replaced my new faith with the guilt I had worn On the beautiful, magical, day you were born Here we go, on our journey, no time left to doubt For the first time in your life, I wanted you out Released from the NICU, and home in your room Laughing and playing and sleeping till noon So here goes your mother, whose heartbeat you know We are in this together, on a journey to grow My baby, you gave me far better than “norm” My child, a survivor, from the day you were born
Some premature babies have to spend time in a hospital’s newborn intensive care unit (also called NICU) to get special medical care.
Premature birth can lead to long-term challenges for some babies, including intellectual and developmental disabilities.
After they leave the hospital, premature babies get regular checkups to monitor their health and development.
A premature baby is one who is born too early, before 37 weeks of pregnancy. Each year, about 1 in 10 babies in the United States is born prematurely. Premature babies may not be fully developed at birth. They may have more health problems and may need to stay in the hospital longer than babies born later. Thanks to advances in medical care, even babies born very prematurely are more likely to survive today than ever before.
Your baby’s health care provider may use these terms to describe your baby’s birth:
Late preterm: Your baby is born between 34 and 36 completed weeks of pregnancy. Moderately preterm: Your baby is born between 32 and 34 weeks of pregnancy. Very preterm: Your baby is born at less than 32 weeks of pregnancy. Extremely preterm: Your baby is born at or before 25 weeks of pregnancy. Some health problems related to premature birth can last a lifetime. Other problems, like intellectual or developmental disabilities, can show up as your baby grows and later in childhood. These are problems with how the brain works that can cause a person to have trouble or delays in physical development, learning, communicating, taking care of himself or getting along with others.
The earlier in pregnancy a baby is born, the more likely he is to have health problems. Babies born before 34 weeks of pregnancy are mostly likely to have health problems, but babies born between 34 and 37 weeks of pregnancy are also at increased risk of having health problems related to premature birth. Some premature babies need to spend time in a hospital’s newborn intensive care unit (also called NICU). This is the nursery in a hospital where sick newborns get medical care. Premature babies stay in the NICU until their organs develop enough to stay alive without medical support. Some babies need NICU care for weeks or months until they can breathe on their own, eat by mouth and maintain their body temperature and body weight.
Do premature babies need special medical care? Talk to your baby’s health care providers about any health conditions your baby has. He may be healthy enough to go home soon after birth, or he may need to stay in the NICU for special care. Your baby can probably go home from the hospital when he:
Weighs at least 4 pounds Can keep warm on his own, without the help of an incubator. An incubator is a clear plastic bed that helps keep your baby warm. Can breastfeed or bottle-feed Gains weight steadily Can breathe on his own Your baby may need special medical equipment, medicine or other treatment after he leaves the hospital. Your baby’s provider and the staff at the hospital can help you with these things and teach you how to take care of your baby at home. They may recommend that you bring your baby to a neonatologist for checkups after your baby leaves the hospital. A neonatologist is a doctor who specializes in caring for premature babies and children. Talk to your baby’s provider if you have any questions about your baby’s health or long-term effects of premature birth. Hospital staff also can help you find parent support groups and other resources in your area that may be able to help you care for your baby.
What kinds of health problems can premature babies have? Health problems that may affect premature babies include:
Anemia. This is when a baby doesn’t have enough healthy red blood cells to carry oxygen to the rest of the body. Anemia can cause low levels of oxygen and glucose (sugar) in a baby’s blood and make it hard for a baby’s organs to work properly. Premature babies in the NICU may have anemia because they get regular blood tests to check their health. They often can’t make new blood cells quickly enough to replace the blood cells they lose during blood tests. This can lead to anemia.
Breathing problems. These include:
Apnea of prematurity (also called AOP). This is a pause in breathing for 15 to 20 seconds or more. It may happen together with a slow heart rate called bradycardia. Bronchopulmonary dysplasia (also called BPD). This is a lung disease that can develop in premature babies as well as babies who have treatment with a breathing machine. Babies with BPD have a higher risk of lung infections than other babies and BPD sometimes leads to lung damage. Respiratory distress syndrome (also called RDS). If a baby has RDS, her lungs can’t make enough of a substance called surfactant. Surfactant is a slippery substance that keeps small air sacs in a baby’s lungs from collapsing. Infections or neonatal sepsis. Premature babies can get infections more easily than other babies because their immune systems aren’t fully developed. The immune system protects your body from infection. Infection in premature babies can lead to sepsis, when the body has an extreme response to infection. Sepsis can be life-threatening.
Intraventricular hemorrhage (also called IVH). This is bleeding in the fluid-filled spaces (also called ventricles) in the brain. The more premature a baby is, the more likely he is to have IVH.
Newborn jaundice. This is when your baby’s skin and the white parts of his eye look yellow. It’s caused by the build-up of a substance called bilirubin in your baby’s blood. Jaundice happens when a baby’s liver isn’t fully developed or isn’t working well.
WhenIfound out IwaspregnantI was scared andhappy at thesame time, Ididn’tknowif my conditions wouldget worst will my pain increase is it even safe to continue with the pregnancy but thenI thought about my boys and what a blessing they have been in my life and we madethe decision to continue withthepregnancy. I’m now 20 weeks and I’mhaving my lil baby girl I’vealways wanted so yes we made therightdecision. So far ithasn’tbeen as bad as Ithought it would be Ihadregular morning sickness the first month cramping for a fewweeks all normalthings to expect when your pregnant the morning sickness has now passed And I’m feeling ok. I don’tthink my paincan increase anymorethanwhatit is because of all the damagethatIalreadyhave mayb my baby girl will heal me 🙏🏾 It hasn’t been easy but I will get through it because I’m a fighter plusIhave tothis is my girlllllllllllllllllllllll 👧🏽👧🏽👧🏽🤰🏽🤰🏽
I’ve been off of all meds including medicalmarijuanafor a few months now which isscary because I know AS can not go untreatedfor too long but I’m going to try acupuncturebecauseit’s safe in pregnancy. Ido light yoga at home, warm baths andmy hubby gives me massages which is helping a lil, Itake pretty good care of myselfandIhave agreatsupport system so IthinkI will be ok!
Here’s what you should know if you are pregnant, planning to become pregnant and breastfeed.
For a woman considering pregnancy, some questions are universal – will I have severe morning sickness? Should I have natural childbirth or get an epidural? Will I use cloth diapers or disposables? But if you have ankylosing spondylitis (AS) you probably have some unique ones – will my disease or medication affect my baby’s development? Will my symptoms worsen during pregnancy? Will arthritis affect my delivery? Will I be physically able to care for my new baby?
In most cases, the answer to these questions can be quite reassuring.
Here’s what you should know about common concerns when you’re thinking about having a baby, during pregnancy and after the delivery.
There is no evidence that having ankylosing spondylitis will affect your ability to conceive. But pre-planning is important, so practice effective birth control until you decide the time is right for you to have a child.
Ideally, you should discuss family planning issues with your rheumatologist early on, not just when you’ve decided you would like to start trying to have a baby.
Effect of ankylosing spondylitis and medications on baby:Planning will always involve a discussion of which medications you can and can’t safely continue during pregnancy. Methotrexate is one drug used in AS treatment that should always be stopped before attempting pregnancy, due to its effects on fertility and possible risk of birth defects.
The risks of most drugs prescribed for AS end when the drug is out of your bloodstream. Neither the drugs you took in the past nor AS itself should affect the development of your baby.
Passing on AS:There is a genetic component to autoimmune diseases, such as AS. While there’s a possibility that your child may develop AS or another autoimmune disease, it’s really important to remember that many women with autoimmune diseases have healthy babies who don’t develop arthritis or any other type of autoimmune disease.
Disease activity during pregnancy:Similarly, having a baby will not likely have a significant impact on the course of your AS. Research dating back to the late 1990s suggested that women with AS have a roughly equal chance of having their disease activity worsen, improve or stay the same during pregnancy. A 2018 study published in Rheumatology found that for women with AS, disease activity tended to stay low and stable throughout most of pregnancy with disease activity peaking in the second trimester.
Caring for new baby:A study published in the Journal of Fetal and Maternal Medicine in 2016 found that for about one-third of women AS flare in the months after delivery, which could mean you’ll need some extra help caring for your baby if that happens.
AS’s effect on delivery:
If arthritis affects your back or hips, you may notice more pain in those joints as your baby grows and places more stress on those joints. Ask if your obstetrician has experience working with women with disabilities. If possible, find out the same about the anesthesiologist who will be working with you in the delivery room. In some cases, involvement of the hips and spine could make a vaginal delivery more difficult and inflammation of the spine could make it difficult to administer an epidural – the injection of an analgesic directly into space around the spinal cord to numb the lower half the body during delivery. You should discuss these possibilities with your doctor.
If disease becomes more active during pregnancy or you develop any complications, you should speak with your OB/GYN about a referral to high-risk OB/GYN. However, a 2016 study in the Journal of Maternal-Fetal & Neonatal Medicine found no increase in adverse pregnancy outcomes in women with AS.
Planning for your newborn’s care:During pregnancy it’s important to plan for the help you’ll need after you deliver. Even if your disease is well controlled you may have more fatigue than other new mothers, so you’ll likely need extra help once the baby comes.
Ability to breast feed:There’s no evidence that AS lowers milk production. However, some women experience pain when trying to hold their babies to breastfeed, especially if their AS is not well-controlled. While you can’t pass AS to your child by breastfeeding, you can pass along some medications. Many medications are safe to use in lactation, and medication passage through breastmilk is relatively low in many cases.
For most women with AS a healthy delivery and baby is possible.
Disease activity:If you notice worsening of symptoms, contact your rheumatologist, because a flare is more likely in the months after delivery. And even if your disease is stable, childbirth and caring for a newborn is exhausting, so fatigue is likely.
Medication and breast feeding:If controlling your disease after delivery requires a change in medication, let your doctor know if you are breastfeeding. Many medications, but not all, are safe for breastfeeding.
Caring for baby:Taking care of yourself now is especially important – take your medications, eat healthfully, nap when the baby naps and get help from your partner, trusted family and friends and even paid help, if needed or possible. Parenthood is a challenging, lifelong job, but may provide unique joys. Taking care of yourself now can help ensure your ability to care for your child in the years ahead.
I fully understand how difficult it is to find clothes that are not only stylish but also comfortable. I also know how difficult it can be to even get up, wash and dress…let alone thinking about what outfit to put together. I have researched clothing that can be dressed up or down depending on how you are feeling that day. Even if it is a low energy day you can still pull them on, without having to think about it and know that you look good and will feel comfortable.
It might seem like a superficial thing but expressing your personality through your clothes is a huge part of what makes you unique and I seriously struggled with feeling unattractive some days. Not being able to dress myself how I liked just added to the feeling of a loss of control that I had over my life. One major issue with chronic illness is that the outside often doesn’t reflect the inside. Fashion becomes more functional when you are disabled or chronically ill. My hope is that this post will show you that you can still have some control over how you express yourself and still find clothes that are fashionable yet comfortable and easy to put on.
Most of the women I know with chronic illness live in pajamas or leggings as nothing else is comfortable. I want to help you see that you can be both fashionable and comfortable. It won’t take your chronic illness away but I know from my own experience that when I felt like I looked good and desirable, it lifted my mood and I felt better mentally even if I couldn’t feel better physically.
Functional fashion with chronic illness
Fashion for me now also needs to be functional. I suffer a lot with temperature irregularities so I need clothes that will be warm. I like soft fabrics which are comfortable and move easily and high waistbands that don’t dig in. However I find this type of clothing is not found easily on the highstreet and will often cost more to buy from specialist shops. People with chronic illness are often unable to work and have huge doctors bills so having to source clothing from more expensive specialist shops can be an issue.
Actually going shopping used to be a nightmare so I would purchase most of my clothes online and still do. The harsh lighting and excessive noise from loud music playing in the store would have me bedbound for weeks after a shopping trip. I also found the fitting rooms too small to easily try on clothes as I would often need a second person to help me dress and most didn’t have seats to rest in between trying on clothes. Some stores now have disability changing rooms but when I once asked to use one I was told I couldn’t because I didn’t have a wheelchair. I think there needs to be more education and awareness that not all disabilities are visible.
Having a disability doesn’t mean that you are depressed!
I honestly don’t think that women with chronic illness or disability are considered enough or represented in the fashion industry. Everyone wants to look nice even when sick. I think that when people see someone being disabled and dressing up and having fun it helps challenge the stereotype that all disabled people are depressed or that their life sucks. Being chronically ill or disabled is of course a part of you, but it’s not the only part of you and that also needs to be recognized. Inside is the girl who still loves fashion and wants to look nice and represent her personality even if she has no control over her body. That desire doesn’t go away when you get sick.
So here are ten pieces available online to help you still show your love for fashion with chronic illness.
1. Jersey tie waist midi dress €23.99
This soft jersey dress comes from the online company My Chronic Style. My Chronic Style is the worlds first clothing range completely focused on comfort and fit for those suffering with invisible illnesses.
All of their clothes have been chosen with soft fabrics and waist bands that won’t dig in even on days where you may feel bloated or in pain. This beautiful dress is comfortable and can be dressed up on a good day or for an occasion but is also comfortable for couch bound days. It is also affordable and comes in colours grey, khaki and navy. You can shop this dresshere.
2. ASOS DESIGN co-ord jumper and skirt in ribbed knit €34.56, €38.71
This soft knit co-ordinatingknit skirtwith an elasticated waist and beautifulv-neck jumperwith volume sleeve is fashionable, warm and comfortable.
3. ASOS DESIGN Plain Cape €24.89
Sometimes when you are not feeling well you just want to wrap yourself up warm and cosy. This beautiful softgrey capeis perfect for those days you just want to wrap yourself up but is also stylish enough to confidently express your individuality.
4. Animal Print Jersey Peg Trousers €30.00
These jerseypeg style trousersfrom M&S have added stretch and an elasticated waist, that work together to keep you feeling comfortable while looking chic in these animal print trousers. The tapered fit creates a stylish silhouette with these peg trousers, while the animal print adds a stylish touch.
5. M&S Pocket Waisted Midi Dress €54.00
This beautifulMidi dress from M&Sis made from a linen blend material with 100% cotton lining that makes it both soft and lightweight. My favourite thing about this dress is its oversized pockets which give it a charming retro vibe. It is light for those days when any material feels too heavy and can be layered with either a jumper or cardigan for extra comfort.
6. Turtleneck Sweater €23.99
This one is all about comfort. It is the perfect item for layering and can be added on top of any outfit for extra warmth and comfort. The sweater is loose enough to be comfortable but warm and soft enough to snuggle into. This elegentloose turtleneck sweateris again from My Chronic Style and comes in four colours, grey, black, green and this gorgeous blue.
7. Hooded Sweatshirt Dress €14.00
Thishooded sweatshirt dressfrom Shein is such a simple and stylish way to dress comfortably without having to put much thought or effort in. It is a very affordable item to add to your chronic illness wardrobe.
8. QED London kimono cardigan with floral embroidery €33.18
This beautiful relaxed fit and lightweightkimono cardiganis the perfect way to easily dress up any outfit.
9. Black Hanky Hem Jersey Midi Dress €22.99
This cute littledress from New Lookis loose, light and easy to slip on for days that you want to look nice but when energy is low. I just love the dipped hanky hem on it which adds a bit of edge without having to put in too much effort.
10. ASOS DESIGN plisse midi dress with elasticated waist in spot print €52.54
Thisbeautiful dressis easy to put on with a pullover style but is super fashionable and has a gorgeous vibrant colour with spot pattern detail. This dress is an instant mood lifter and will suit many occasions from days when you are resting to those special occasions where you also need to remain comfortable.
So as I said previously today’s Sunday Ten is a matter close to my heart. I literally spent the majority of my very ill days in pajamas because I didn’t have the energy to research clothing on top of everything else. I know that I wish that I had a blog post like this to help source items that were both functional and fashionable so I hope that this blog posts help others in this way.
Many people find peer support a helpful tool that can aid in their recovery. Support groups are a great resource for people to maintain control over their lives, to give and take the wisdom and experience that comes from living with a devastating illness. An effective support group helps recovery through mutual support and provides updated information about causes and treatment.
I started my online support group in February of 2019 after I came out of a deep depression from being diagnosed. Having a support group and being able to help others have been such a proud accomplishment in my life battling AS and fibromyalgia, most days are hard but having support makes it a lil more easier to cope with because you have people who truly understand what your going through and who are there to lend support and share experiences. My online support group has been so successful that I was granted the opportunity to lead my own in person support group in my hometown of North Myrtle Beach SC. If you or someone you know is suffering with a chronic illness and is looking to join a fun loving support group please go to https://www.spondylitis.org/Community/Support-Groups/North-Myrtle-Beach for a support group near you.
I was recently diagnosed with Adenomyosis like Ankylosing spondylitis I have never heard of this disease before diagnosed, seems like once you get one autoimmune disease so many other things start happening in your body that you can’t control and no one has the answers as to why so i’am left with yet another disease that causes discomfort and pain 😔
Adenomyosis (ad-uh-no-my-O-sis) occurs when the tissue that normally lines the uterus (endometrial tissue) grows into the muscular wall of the uterus. The displaced tissue continues to act normally — thickening, breaking down and bleeding — during each menstrual cycle. An enlarged uterus and painful, heavy periods can result.
The cause of adenomyosis remains unknown, but the disease usually resolves after menopause. For women who have severe discomfort from adenomyosis, hormonal treatments can help. Removal of the uterus (hysterectomy) cures adenomyosis.
Sometimes, adenomyosis causes no signs or symptoms or only mild discomfort. However, adenomyosis can cause:
Heavy or prolonged menstrual bleeding
Severe cramping or sharp, knifelike pelvic pain during menstruation (dysmenorrhea)
Chronic pelvic pain
Your uterus might get bigger. Although you might not know if your uterus is enlarged, you may notice that your lower abdomen feels tender or causes pelvic pressure.
When to see a doctor
If you have prolonged, heavy bleeding or severe cramping during your periods that interferes with your regular activities, make an appointment to see your doctor.
The cause of adenomyosis isn’t known. There have been many theories, including:
Invasive tissue growth.Some experts believe that adenomyosis results from the direct invasion of endometrial cells from the lining of the uterus into the muscle that forms the uterine walls. Uterine incisions made during an operation such as a cesarean section (C-section) might promote the direct invasion of the endometrial cells into the wall of the uterus.
Developmental origins.Other experts suspect that adenomyosis originates within the uterine muscle from endometrial tissue deposited there when the uterus first formed in the fetus.
Uterine inflammation related to childbirth.Another theory suggests a link between adenomyosis and childbirth. Inflammation of the uterine lining during the postpartum period might cause a break in the normal boundary of cells that line the uterus. Surgical procedures on the uterus can have a similar effect.
Stem cell origins.A recent theory proposes that bone marrow stem cells might invade the uterine muscle, causing adenomyosis.
Regardless of how adenomyosis develops, its growth depends on the circulating estrogen in women’s bodies.
Risk factors for adenomyosis include:
Prior uterine surgery, such as a C-section or fibroid removal
Most cases of adenomyosis — which depends on estrogen — are found in women in their 40s and 50s. Adenomyosis in these women could relate to longer exposure to estrogen compared with that of younger women. However, current research suggests that the condition might be common in younger women.
If you often have prolonged, heavy bleeding during your periods, you can develop chronic anemia, which causes fatigue and other health problems.
Although not harmful, the pain and excessive bleeding associated with adenomyosis can disrupt your lifestyle. You might avoid activities you’ve enjoyed in the past because you’re in pain or you worry you might start bleeding.
Some days I try not to think about what my life has become living with a chronic illness that no one can see that most people haven’t even heard of and other days that’s all I think about it’s a never ending battle fighting my own body I feel trapped in a body that I can’t control everyday is a challenge from feeling tired not sleepy tired but body tired my body gets so tired literally the pain drains my body n soul the feeling of not being able to do the things that were once so easy and simple have now become the hardest things you have to do just to get through the day can become depressing you start to feel useless lonely misunderstood because no one understands your pain no one understands or believes that you can be in pain all day everyday. The pain never goes away the burning, stabbing, numbness, tingling, muscle weakness, joint pain, fatigue is there ALL DAY and all i can do is keep fighting through it to enjoy life still, that’s no way to live if you ask me. I’m grateful for my new journey I’m helping people in ways i never thought I could just by sharing my story and opening up a communication network for those suffering also u see I can’t do the things I use to do but I can do new things that can change someone’s life, when I was first diagnosed I went into a really deep depression I napped all year hence why I choose that name for my blog n social media networks I didn’t adjust right away I was moody always upset for no reason and just wanted to sleep the pain away I was just mad at the world for taking away what I loved it took me some time but as I educated myself I realized i’am Stronger then this and I will defeat this and fight in 2019 I told myself nay it’s time to fight and take your fab life back don’t let this stop you and I remind myself everyday when I have those moments where I want a give up but I’m fighting not only for me but for everyone else who is facing chronic illness although my life has changed drastically i found a new purpose and the reward of helping others cope is priceless if my story can help one person I did my job! If I can inspire one person I did my job if I can motivate one person I did my job if I can be a friend a listener I did my job see this journey is not only my journey it’s a whole MOVEMENT! This is my awesome support group 💙💙